Friday 28 June 2013

Letter from eye hospital

This was good to receive this morning. Letter from eye hospital to GOSH about our last appointment.


"Dear Dr

It was very nice to see Kate today.  She has had cranial advancement from which she has recovered extremely well.

From the eye point of view, we have no concerns today and all looks healthy.  We will be reassessing her again in the Eye Clinic in 6 months.

Kind regards,

XXX
Consultant Ophthalmic Surgeon"


Saturday 15 June 2013

Post surgery Eye Appointment

We saw the ophthalmologists and consultant this Thurs, 13th June 2013, at our local eye hospital. 

I mentioned the squint and first the lady who did all the basic tests said she sees no squint. This was extremely good to hear. Kate being able to talk a lot more now was able to be tested better than before as she could name all the things they were holding up for her to see this time. She's now 20 mths old. 

By the time we saw the consultant Kate had had enough of waiting. Me too!  It was difficult for them to examine the back of here eyes etc as she didn't like them (one man & lady) at all. Crying isnt a good 'mode' to be in for an eye examination!  I had been prepared as we've waited a long time there before, but she was hungry and she didn't like their lights or headgear!! 

A chocolate roll helped & the consultant got to see what she wanted in the end and said there's no sign of any problems, pressure or anything. She seemed happy with everything.

She thought Kate looked remarkably good after her surgery and said that the darkness under her eyes will continue to fade, it's just a very sensitive and translucent bit of skin. 

We will have a follow-up appointment with them in 6 months. 

Wednesday 5 June 2013

5th June, 7 weeks post-op

Just a quick post to say Kate still has very slight dark marks under her eyes still but they are fading.

The scab of her scar is beginning to come off in bits with the stitches and the skin looks great, though you can see through it a dark line, that I think is where you can see where the bone was cut - or maybe it is just the scar. It's hard to tell when they hardly shaved off any of her hair. I can't really see!


We have her eye appointment next Thursday.  This is with the original Opthalmologist department at our local hospital, Sutton Eye Hospital.  We'll see the consultant that originally referred us to Great Ormond Street before we knew she had Craniosynostosis.  Her squint looks much less than before when I've posted, but I'm keen to discuss what might happen and how this will be dealt with if it doesn't correct itself.

I've noticed since our 5 year old's class at school had vision checks that a few have now got glasses.  One Mum I spoke to yesterday said it's because her daughter has a lazy eye (similar to, or can cause a squint) and they're doing glasses before patching.  The squint operation isn't anything major but it is something I'd like to avoid, obviously!


I'll post again when we've had our appointment next week at the eye hospital.