Monday 15 April 2013

General up-date - 2 days to surgery



On Friday I had an emotional morning.  I've no idea why, I just woke up feeling worried.  Sick with worry and a bit tearful.   I warned the friends we were meeting that I was feeling a bit 'wobbly' and that I didn't want to discuss Kate's surgery at all.   I cried in the car all the way there, and I think that got it out of my system.  

We had a lovely day, and I went out with other girlfriends in the evening which was really great too.

Over the weekend we saw both sets of grandparents and I showed my Mum Nikki's school things and talked a bit about her school routine. I've emailed my Mum, who will mainly be looking after Nikki & taking and collecting her from school, all the information I think she needs so she can refer to it.   

Our friend who used to be a play specialist at Great Ormond Street came over with a box of things for Nikki.  This included a doll with a 'special' haircut and stitches over her head, cannula in her hand, a toy doctors set and even a toy heart monitor, ECG machine and more.  

She'd made her a story book with pictures of the doll. This showed the various stages Kate may go through after the operation, with different tubes and attachments, showing her being given blood and medicine through the cannula, bandages on her head and even sore eyes.  

Nikki named the doll Lydia.  They played at the table with all this and went through the 'doll's' story and helped bandage her, give her medicine and blood, monitor her heart etc.  



We then got the blood out of the packet onto a tray, which was like half-set jelly and played with this, happy and sad faces and paints.

This was brilliant for her, and after dinner Nikki showed Daddy it all and what happens to Lydia in hospital and took her to bed with her to look after her.  

Today Kate got me up early which meant there was no real rush for getting back into the school run after Easter & it all went smoothly.  Nikki didn't complain and I left her there quite happy.  I'm just hoping NOT to get a phone call today because that could be moving the surgery date again!  We are due a call tomorrow evening to talk about timings of coming in on Weds and fasting. 

A main concern now is actually getting to Great Ormond Street Hospital now, as Margaret Thatcher's state funeral will mean our bus will be on diversion & could delay our journey.



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